2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
| Expanding Awareness of cCMV in Arizon:Stop CMV AZ / Alto CMV AZ
Expanding Awareness of cCMV in Arizon:Stop CMV AZ / Alto CMV AZ
Expanding awareness of cCMV in Arizona: Stop CMVAZ / Alto CMV AZ
Muldoon KM, Kaltenbach , Dobson SD, Klomhaus H, Selbst M, Olsen L
Congenital cytomegalovirus (cCMV) is the leading non-genetic cause of hearing loss which is often late-onset, making early diagnosis difficult without newborn screening. Congenital cytomegalovirus (cCMV) is the leading viral cause of disabilities in the United States. An estimated 400-600 newborns are born with cCMV annually in AZ, of which ~80-100 children will have permanent disabilities. cCMV infection is preventable if women are educated about contracting it while pregnant. Research has shown that cCMV is disproportionately higher in communities of color due to disparities in access to prenatal care, medical information, and clinical follow-up. The absence of newborn cCMV screening coupled with a lack of cCMV awareness is the root cause of its continued impact on Arizonan communities. Stop CMV AZ/Alto CMV AZ includes key public health, parent and provider collaborators associated through AzEHDI. The goals of this multi-year program is to 1) measure and 2) develop and improve the effectiveness of culturally humble educational materials about congenital cytomegalovirus (cCMV) prevention, developed specifically for Arizona’s unique maternal population comprised of a relatively high proportion of young mothers who identify as Spanish-speaking/Latinx. 3) expand educational materials and activities in ASL and Spanish. By using the lens of cultural humility and partnerships in our community, we aimed to evaluate whether Spanish-speakers more likely to engage in health education materials when presented in Spanish. It is important to measure the effectiveness of materials developed specifically to address the concerns of Spanish-speaking populations to increase health equity around prenatal CMV education.
Learning Objectives:
1.define culturally humble materials
2.define humility in relation to health education.
3.discuss evidence for engagement with educational materials.
- define culturally humble materials
- define humility in relation to health education
- discuss evidence for engagement with educational materials
Presentation:
3478265_16429MelissaSelbst.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Kathleen Muldoon
(Primary Presenter,Co-Author), Midwestern University, kmuldo@midwestern.edu;
Dr. Muldoon received her PhD in anthropology from Washington University in St. Louis, and is Associate Professor of Anatomy at Midwestern University, Glendale, AZ, where she teaches anatomy and embryology to medical and allied health students. Dr. Muldoon is an education scholar, with interest in the effectiveness of teaching innovations on retention of material and public health knowledge. Her research interests include evaluating methods for prevention of congenital cytomegalovirus (CMV) infection through professional education, and promotion of CMV awareness and behavioral interventions in the community. Dr. Muldoon's research has been funded by the National Science Foundation, the National Geographic Society, American Philosophical Society, and Sigma Xi, among others. She has given research seminars and community outreach workshops nationally and internationally, and her work has been featured on National Public Radio. Dr. Muldoon is the proud mother of three children: her eight-year-old son has multiple disabilities due to congenital cytomegalovirus.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -
Melissa Selbst
(Co-Presenter,Co-Author), The EAR Foundation of Arizona, melissa@earfoundationaz.com;
Executive Director, 2006-present
EAR Foundation of Arizona
Staff and volunteer management, Fundraising, Community Relations, Board Management and Development
Financial Management, Program Management Professional Education and Training
Director of Program Services and Public Affairs, 1996 – 2006
March of Dimes Arizona Chapter, Phoenix, Arizona
Program management and oversight for public health education, professional health education,
advocacy and grants management for the Arizona Chapter.
Consultant, Creative Management Learning Solutions, L.L.C., 1996-current
Developed a Managed Care Course Curriculum and course instruction on various health topics. Participated in the development, implementation and evaluation of a HRSA grant. Conducted patient chart audits. Developed patient education materials for patient newsletters both Medicaid and Medicare populations. Develop and market health education tools and trainings.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with The EAR Foundation of Arizona.
Nature: employed as the Executive Director and Co-founder of Stop CMV AZ.
Nonfinancial -
No relevant nonfinancial relationship exists.
Heidi Klomhaus
(Co-Presenter), Arizona Hands & Voices, executivedirector@azhv.org;
Heidi Klomhaus holds a Certificate in Deaf Studies, an AAS in Sign Language Interpretation and a BA in Interdisciplinary Studies-Public Administration. She serves as Executive Director and Guide By Your Side Coordinator of Arizona Hands & Voices. Being Hard of Hearing herself with severe hearing loss led her to attending college and pursuing studies in the Deaf world. During that time, her youngest child was born hard of hearing, giving Heidi a new direction in life. Knowing there were opportunities to make a difference in her own daughter’s journey led her to Arizona Hands & Voices where she is now making a difference in the lives of deaf or hard of hearing children and their families statewide.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.