2026 Early Hearing Detection & Intervention Conference
March 15-17, 2026 • Jacksonville, FL
3/16/2026 | 3:10 PM - 3:40 PM | Using Data Systems to Identify Deaf and Hard-of-Hearing in Newborns: Findings from a Scoping Review | City Terrace 6
Using Data Systems to Identify Deaf and Hard-of-Hearing in Newborns: Findings from a Scoping Review
Early identification and intervention are crucial for infants who are deaf or hard of hearing (DHH), yet many are lost to follow-up after initial screenings. Integrating with other data sources could improve tracking and follow-up, but it is unclear how widely Early Hearing Detection and Intervention (EHDI) programs use these innovations. The Public Health Informatics Institute (PHII), funded by the Centers for Disease Control and Prevention (CDC) and the Council of State and Territorial Epidemiologists (CSTE), conducted a scoping review to explore which newborn screening services are using integrated data systems, how early hearing data is included in these systems, and how administrative databases can be used to assess hearing loss diagnosis. This scoping review identified gaps, promising practices, and recommendations for the timely identification of DHH infants using integrated data systems and administrative databases. The scoping review followed the Preferred Reporting Items for Systematic Reviews and Meta-analysis Protocols (PRISMA-P) guidelines and reviewed English-language literature from 2010 onward within the United States, focusing on infants up to 12 months. Both published and unpublished materials were sourced from electronic databases and a list of known information sources. The review suggests that using integrated data and administrative databases can enhance early detection and trend monitoring by providing more timely information for follow-up and connection to services. Follow-up efforts for DHH newborns can benefit from connecting to existing data sources, either by storing early hearing data within the same system or accessing other sources through data linkages. The findings provide promising evidence that the majority of EHDI programs in public health agencies use an integrated data capture system as defined by this scoping review. This presentation will highlight the potential of integrated data systems to improve the timeliness of follow-up and intervention for infants who are DHH, ultimately leading to better developmental outcomes.
- The participant will be able to learn how public health agencies are incorporating early hearing data into integrated data capture systems.
- The participant will be able to understand which newborn screening services are using integrated data capture systems.
- The participant will be able to identify ways administrative databases, like Medicaid, can be used to assess hearing loss diagnosis in individuals aged 0-1 year.
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Presenters/Authors
Sarah Shaw
(Co-Presenter,Author), Public Health Informatics Institute, sshaw@taskforce.org;
Sarah Shaw is a senior informatics analyst at the Public Health Informatics Institute. She began her informatics career over 20 years ago at the Texas EHDI program where she monitored and evaluated data quality and completeness. Since then, she has led projects in the fields of device interoperability, data governance, standards adoption and data modernization. Sarah holds a MPH and a BS both from Tulane University. When she is not at work, you can find Sarah hiking trails and listening to live music in the small town of Ashland, Oregon.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Lura Daussat
(Primary Presenter,Author), Public Health Informatics Institute , ldaussat@taskforce.org;
Lura Daussat serves as the director of the practice support business unit; before moving into this role, she was a senior informatics analyst for PHII. While at PHII she has worked on projects related to child and adolescent mental health and audiology reporting. Previously, Lura spent 12 years at OZ Systems, where she partnered with state public health programs that included newborn hearing screening. In addition, Lura authored two implementation guides for HL7 on exchanging data from devices to public health for newborn hearing screening and critical congenital heart disease.
Lura holds an MPH from Tulane University School of Public Health and Tropical Medicine and a BS in biology from the University of North Texas. She served three years as a Peace Corps Volunteer in Ghana between her undergraduate and graduate programs, and is currently a doctoral candidate in Georgia State University’s DrPH program.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Council of State and Territorial Epidemiologists and Centers for Disease Control and Prevention. .
Nature: This publication was supported by Cooperative Agreement number
NU38PW00005 from The Centers for Disease Control and Prevention (CDC) and CSTE and
does not necessarily represent the views of CDC and CSTE.
Nonfinancial -
No relevant nonfinancial relationship exists.
Mondie Tharp
(Co-Author), Public Health Informatics Institute, mtharp@taskforce.org;
Mondie Tharp serves as a project manager at PHII, supporting both the Practice Support Unit and the Requirements Lab. She brings over 15 years of experience in nonprofit, research and international health program management across a variety of public health topics. Prior to joining PHII, she worked at the Secretariat for The Global Partnership for Zero Leprosy (located at the Task Force for Global Health), where she led the planning and implementation of GPZL’s work with 12 country partners. Her other roles have included systems alignment projects at the Georgia Health Policy Center, HIV research studies in the Department of Epidemiology at Rollins School of Public Health and Infant and Young Child Feeding programs at CARE USA. Additionally, she worked for seven years overseeing refugee resettlement programs, both locally and nationally.
Mondie holds a Master of Public Health in global health from Emory University’s Rollins School of Public Health as well as a Bachelor of Arts degree in psychology and religion from the College of William and Mary.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -