2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
As part of program evaluation and quality improvement initiatives, the Centers for Disease Control and Prevention, Office of Special Education Programs, and the Health Resources and Services Administration encourage sharing of data to improves services for infants and toddlers who are deaf or hard of hearing. State Part C Programs are required to coordinate and collaborate their child find efforts and ensure the programmatic needs of all eligible children including those who are deaf or hard of hearing are being met. EHDI and Part C state programs often encounter challenges with accessing and sharing data and rely on collaboration with each other to fulfill requirements and requests to improve outcomes for young children and their families. Therefore, both EHDI and Part C benefit greatly from sharing data to improve their programs, while still protecting the privacy of family information. State EHDI and Part C early intervention programs are engaged in various levels of data sharing. Federal and state agencies recognize the need to increase the quality and frequency of data sharing arrangements between EHDI and Part C to improve early identification and services for young children who are deaf or hard of hearing. This interactive workshop is designed as a working session for state teams of Part C and EHDI Program representatives. Participants will receive information and resources from national technical assistance staff and selected states to assist them in developing and/or enhancing data sharing arrangements. Several new resources from the CDC EHDI Outcomes Committee will be shared as well as a new NCHAM/DaSy/ECTA webpage. Small group discussions will allow state teams and other participants to discuss challenges, share strategies and plan for next steps in their data-sharing activities.
- Participants will increase their understanding of the privacy requirements (e.g., under IDEA, FERPA and HIPAA) and important technical aspects needed to address data sharing.
- Gain knowledge of data sharing arrangements including challenges and strategies from selected states.
- Network with other participants and presenters to discuss current state activities and plans for updating or developing data sharing arrangements among EHDI, Part C, and others
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Dr. White is a Professor of Psychology, the Emma Eccles Jones Endowed Chair in Early Childhood Education, and the founding Director of the National Center for Hearing Assessment and Management. He has been the PI or Co-PI for over $50 million of competitively awarded research. His work has been recognized with awards from such diverse organizations as the Deafness Research Foundation, the American Association for Speech Language and Hearing, The Swedish Society of Medicine, and the Alexander Graham Bell Association for the Deaf. He has hundreds of publications and presentations at scholarly meetings, and has been an invited speaker to more than 35 countries. He also serves on many national and international advisory groups for organizations such as the United States Department of Health and Human Services, the World Health Organization, the Institute of Medicine, and the American Academy of Pediatrics.
Sharon Walsh has provided consultation on the implementation of IDEA for over 30 years. Currently, she is the Governmental Relations Consultant for the Division for Early Childhood of CEC (DEC) and the IDEA Infant and Toddler Coordinators Association (ITCA). Sharon also is a consultant on the federally funded Early Childhood Technical Assistance Center (ECTA) and the Center for IDEA Early Childhood Data Systems (DaSy). In conjunction with her TA Center work, she has provided consultation with CDC EHDI Committee. Previously, she has worked in a large suburban school district, for LRP Publications, and for the National Association of State Directors of Special Education (NASDSE).
Evelyn Shaw, M.Ed., is a technical assistance specialist at the Early Childhood Technical Assistance (ECTA) Center, FPG Child Development Institute. Through a contract with CDC, she supports collaboration between EHDI and Part C state programs to improve outcomes. As a technical assistance specialist with ECTA, she is the topic specialist on ASD and early identification and works on issues related to child find and use of data to target improvements. She has worked in technical assistance for 30 years. Her research interests focus on the translation of research on evidence-based interventions and practices to implementation of these practices at multiple levels (e.g., home, community, provider, program, and state). Most recently she was a co-author of a paper that described the variability in Part C state definitions of diagnosed conditions.