2024 Early Hearing Detection & Intervention Conference

March 17-19, 2024 • Denver, CO

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3/13/2022  |   9:00 AM - 2:00 PM   |  Late Onset Hearing Loss Awareness Campaign Training   |  Room 10

Late Onset Hearing Loss Awareness Campaign Training

Incidence of pediatric hearing loss doubles during early childhood, yet many of these children miss opportunities to be identified. The Late Onset Hearing Loss Awareness Campaign was established in May 2021 by parent-EHDI leader Valerie James Abbott and Justin Osmond, CEO/founder of the Olive Osmond Hearing Fund. The campaign seeks to improve identification rates of children with postnatal hearing loss through increased community awareness about the prevalence, risk factors, and signs associated with late-onset and late-identified hearing loss. In this interactive workshop, facilitated by the campaign co-founder Valerie James Abbott and Dylan Chan, MD, PhD, a pediatric otolaryngologist, participants will explore the facts about late-onset/late-identified hearing loss in young children, the history/mission/vision of Late Onset Hearing Loss Awareness Week, and how state agencies and organizations can leverage the campaign to develop and execute one, two or a series of activities/events in May of each year during Better Hearing & Speech Month. We will review the current state of knowledge on late-onset and late-identified childhood hearing loss, with a focus on its impact on speech and language development and relationship to hearing health disparities and equity. We will discuss existing tools for these children, including preschool hearing screening, Joint Commission on Infant Hearing risk factors, and clinical testing. Participants will receive and complete a Campaign Planning Guide and will have the opportunity to brainstorm ideas within smaller groups.

  • Participants will understand the clinical, demographic, and developmental implications of late-onset and late-identified hearing loss and the existing tools for identification and management.
  • Participants will be able to build a Late Onset Hearing Loss Awareness Campaign team that includes family members and community stakeholders
  • Participants will be able to develop an action plan and execute at least one Late Onset Hearing Loss Awareness activity/event in their state

Presentation:
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Transcripts:
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Presenters/Authors

Dylan Chan (Co-Presenter), University of California, San Francisco, Department of Otolaryngology-Head and Neck Surgery, dylan.chan@ucsf.edu;
Dylan Chan, MD, PhD, FAAP, is Professor and Director of the Children’s Communication Center (CCC) in the Department of Otolaryngology – Head and Neck Surgery at the University of California, San Francisco. He received his PhD in Auditory Neuroscience from the Rockefeller University and MD from Weill Medical College of Cornell University. Dr. Chan completed his ONHS residency from Stanford University, followed by a Pediatric Otolaryngology fellowship at Seattle Children’s Hospital. He is the AAP EHDI California Chapter 1 Champion and Regional Network Liaison for the AAP EHDI program in California. In 2014, Dr. Chan established the UCSF Children’s Communication Center, which is devoted to delivering multidisciplinary care for families of deaf and hard of hearing children, performing community outreach and education, and conducting clinical and translational research projects. By addressing existing shortfalls in care delivery and developing novel interventions, he hopes to significantly impact hearing health in children.


ASHA DISCLOSURE:

Financial -
No relevant financial relationship exists.

Nonfinancial -
No relevant nonfinancial relationship exists.

AAA DISCLOSURE:

Financial -
Financial relationship with N/A.
Nature: Work was funded by the Patient-Centered Outcomes Research Institute (PCORI).

Nonfinancial -
No relevant nonfinancial relationship exists.

Valerie Abbott (Primary Presenter), Center for Family Involvement at VCU; Late Onset Hearing Loss Awareness Campaign, valeriejamesabbott@gmail.com;
Valerie James Abbott is a parent-advocate, an award-winning author, and an EHDI-champion who serves as co-chair of the Virginia EHDI Advisory Committee. She works at the Center for Family Involvement at Virginia Commonwealth University, supporting the needs of families of children who are deaf and hard of hearing and leading projects that support the goals and objectives of Virginia EHDI. She has served on the board of Virginia Hands & Voices and in 2021 she founded the National Late Onset Hearing Loss Awareness Campaign with Justin Osmond, CEO of the Olive Osmond Hearing Fund. Valerie has published several articles online and in print about raising a child with a disability that have gained nationwide attention. Her children’s book Padapillo won (bronze) in the Moonbeam Children’s Book Award and is based on the true story of how her family discovered and came to terms with their daughter's late onset hearing loss.


ASHA DISCLOSURE:

Financial -

Nonfinancial -

AAA DISCLOSURE:

Financial -

Nonfinancial -