2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 2:30 PM - 3:00 PM | Barriers To Access in Immigrant Families with Children who are Deaf or Hard of Hearing | Room 12
Barriers To Access in Immigrant Families with Children who are Deaf or Hard of Hearing
In 2019, 98.4% of newborns in the United States and its territories received a hearing screen. However, newborn hearing screening is not universally available in low and middle income countries, which also have a disproportionate burden of hearing loss. There is a great deal of migration and forcible displacement of families, with children being introduced to different health care systems as a result. Parents of children who are deaf or hard of hearing (DHH) experience many stressors, and studies have been conducted to identify the stressors native English speaking families face while raising a child who is DHH. However, stressors are amplified when the parents are immigrants and/or language incongruent with their child's medical care team. Our group is interested in learning about the lived experiences of immigrant families from Central and South America, the Arabic-speaking Middle East, India, and China that are raising a child who is DHH in the United States. By conducting semi-structured, language- and culture-congruent interviews with these families, we seek to elucidate barriers they face when interacting with the medical system. Themes are extracted from these interviews, and can represent shared immigrant experiences across all groups, as well as concerns that are unique to specific groups or families. By understanding the shared and unique needs of our diverse group of families, we can develop ways to better support them. In this session, our team of first- and second-generation-immigrants, including a social worker for DHH children, pediatric otolaryngologist, medical students, and a deaf adult will present our framework for understanding and supporting immigrant families of children who are DHH, and share the stories of the families whose experiences we have recorded.
- By the end of this session, attendees should be able to identify barriers faced by immigrant families when interacting with their provider.
- By the end of this session, attendees will be able to report on a framework for understanding immigrant families with children who are DHH.
- By the end of this session, attendees will be able to list one way they can support immigrant families with children who are DHH.
Presentation:
3353554_14887KatrinJaradeh.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Katrin Jaradeh
(Co-Presenter,Author), University of California, San Francisco , katrin.jaradeh@ucsf.edu;
Katrin Jaradeh, BS, is a fourth-year medical student at the University of California, San Francisco who is interested in a career in the field of Otolaryngology – Head and Neck Surgery. Katrin received her bachelors at the University of California, Davis where she volunteered and held leadership at Shifa Clinic, a free student run clinic that serves the uninsured and undocumented people from Southeast Asia and the Middle East. As a former asylum seeker herself, Katrin is very invested in the betterment of immigrant and minority health. Her first year at UCSF, she co-founded the Human Rights Cooperative, a student run clinic that offers pro-bono forensic medical evaluations to people seeking asylum. Currently, she is working alongside Dr. Dylan Chan and others to research barriers immigrant families with children who are deaf or hard of hearing face that leads to delay in identification and intervention. Combining her passion for both OHNS and immigrant health, she hopes to improve access to care for these populations while increasing awareness of the barriers these communities face within the medical system.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Elizabeth Liao
(Co-Presenter,Co-Author), University of California, San Francisco, elizabeth.liao@ucsf.edu;
Elizabeth Liao, BA, is a fourth-year medical student at the University of California, San Francisco who is planning to start her career in Otolaryngology – Head and Neck Surgery (OHNS). Elizabeth received her bachelors from the University of California, Berkeley. Prior to starting medical school, she was a Volunteer Coordinator at the Rotacare Richmond Clinic, a free urgent care clinic, for the local community. There, she discovered how to integrate her interests in design and care of the underserved, by creating more streamlined clinic workflows, improving volunteer trainings, and decreasing patient wait times. She continued this passion in medical school by using human-centered design to understand and create interventions for the patient experience in the waiting room for patients at a public hospital. Currently at the Chan Lab, she is researching how care is delivered to cochlear implant patients and children who are found to be and/or become deaf or hard of hearing later in life, in order to understand how we can better optimize their care. Looking forward, she hopes to design interventions in workflows and environments that allow OHNS providers to maximize quality of care and healthcare delivery to underserved communities, while minimizing cognitive and physical effort.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Naveen Yaramala
(Co-Presenter,Co-Author), University of California, San Francisco, naveenyaramala@gmail.com;
Naveen Yaramala is a recent undergrad from UC Berkeley who is interested in attending Medical School. Naveen is a deaf person who is a former recipient of Cochlear Implants. When attending Berkeley, he volunteered at Children's Hospital Oakland in the Audiology Department helping kids through their hearing tests. He would speak about his personal story regarding being born deaf and his experience after receiving CI and hearing for the first time. He also volunteered at a free clinic that served the local community to ensure they were cared for. Naveen is very passionate about helping his local community and the deaf/hh community in his future career.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Silvia Bellfort-Salinas
(Author,Co-Author), University of California, San Francisco, silvia.bellfort-salinas@ucsf.edu;
Silvia Bellfort-Salinas, MSW-LCSW, is a license clinical social worker at UCSF Benioff Children’s Hospital, OHNS’s Children Communication Center. She has over 16 years of experience working in both international and domestic child-welfare. Silvia earned her Bachelor of Arts in Social Welfare and Political Science from UCB, beginning her career working with families and children. Silvia spent a year in Bologna, Italy as a volunteer for refugee families. Upon her return to the United States and while still a student at UCB, Silvia became a Spanish medical interpreter at UCSF Health helping vulnerable monolingual speaking families. This job let her to learn about social work in pediatrics, earning her MSW from the University of Southern California. Today Silvia’s purpose and passion lies in helping children who are Deaf or Hard of Hearing through advocacy, education, research and emotional support.
ASHA DISCLOSURE:
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AAA DISCLOSURE:
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Dylan Chan
(Co-Author), University of California, San Francisco, Department of Otolaryngology-Head and Neck Surgery, dylan.chan@ucsf.edu;
Dylan Chan, MD, PhD, FAAP, is Professor and Director of the Children’s Communication Center (CCC) in the Department of Otolaryngology – Head and Neck Surgery at the University of California, San Francisco. He received his PhD in Auditory Neuroscience from the Rockefeller University and MD from Weill Medical College of Cornell University. Dr. Chan completed his ONHS residency from Stanford University, followed by a Pediatric Otolaryngology fellowship at Seattle Children’s Hospital. He is the AAP EHDI California Chapter 1 Champion and Regional Network Liaison for the AAP EHDI program in California.
In 2014, Dr. Chan established the UCSF Children’s Communication Center, which is devoted to delivering multidisciplinary care for families of deaf and hard of hearing children, performing community outreach and education, and conducting clinical and translational research projects. By addressing existing shortfalls in care delivery and developing novel interventions, he hopes to significantly impact hearing health in children.
ASHA DISCLOSURE:
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No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
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Financial relationship with N/A.
Nature: Work was funded by the Patient-Centered Outcomes Research Institute (PCORI).
Nonfinancial -
No relevant nonfinancial relationship exists.