2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 12:00 PM - 12:25 PM | Parent Support for Deaf/ Hard of Hearing Plus Children | Room 6
Parent Support for Deaf/ Hard of Hearing Plus Children
Come talk with and learn from two Guide By Your Sides (GBYS), who have Deaf/Hard of Hearing (D/HH) Plus Children. Understating the need to have D/HH Parent Guides to help families navigate the journey of having children with complex medical diagnosis on top of a hearing loss.
Having a child with more than one diagnosis can daunting and overwhelming. Medical terminology is a whole new language, and having the correct resources and supports are vital to successfully navigating this new world.
Parents with children who have complex needs are constantly having to prioritize the needs of their child, conquering one health complication at a time.
Sometimes a hearing loss diagnosis may fall to the back burner when dealing with other life threatening diagnosis. It's important to have someone who can empathize and encourage follow-up for services.
You will walk away with a new understanding of the life of a D/HH parent, and with new ways to help support them so they can be the best advocate for their child.
- Understanding the GBYS System
- Acknowledging Additional Needs with Special Needs Children
- Understanding the need for having Deaf/HH Plus resources for families
Presentation:
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Presenters/Authors
Jami Fries
(Primary Presenter,Co-Presenter), Colorado Hands & Voices, Jami@co-hv.org;
Jami Fries lives in Mead, CO with her husband, Eric, and two boys, Liam and Nathan. Nathan is profoundly deaf due to congenital Cytomegalovirus (cCMV), has Type 1 Diabetes, and struggles with childhood apraxia of speech (CAS).
Jami is the Executive Director of Colorado Hands & Voices, the Deaf/Hard of Hearing Plus and congenital Cytomegalovirus (cCMV) Parent Guide, and an ASTra Advocate. She is also an advocate for cCMV awareness and education. Jami has presented at multiple National Conferences and local events regarding hearing loss and congenital CMV.
ASHA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
No relevant financial relationship exists.
Nonfinancial -
No relevant nonfinancial relationship exists.
Andrea Stambaugh
(Co-Presenter), Illinois Families for Hands & Voices, Andrea.Stambaugh@ilhandsandvoices.com;
Andrea Stambaugh became vested in CMV awareness and advocacy when her son, Axel, was born with congenital CMV in June of 2016. Since receiving Axel’s congenital CMV diagnosis Andrea has become an active member of the Board of Directors for IL Hands & Voices, and formerly a member on the patient education and outreach committee for the National CMV Foundation, serving on the parent planning committee for the 2018 CMV Public Health and Policy Conference, hosted a CMV Awareness fundraiser in her hometown that raised $5,300 for NCMVF, a parent liaison volunteer for Ann & Robert H Lurie Children’s Hospital of Chicago, and a parent advocate for Cochlear Americas. Andrea has presented on CMV at the Hands & Voices Leadership Conference and EDHI Conference, and has had several articles on CMV published on CMV as well as keeps a blog called, Axel’s Journey With CMV, on Facebook.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -