2024 Early Hearing Detection & Intervention Conference
March 17-19, 2024 • Denver, CO
3/15/2022 | 10:00 AM - 10:25 AM | National Family Association for Deaf-Blind | Room 8
National Family Association for Deaf-Blind
The National Family Association for Deaf-Blind exists to empower the voices of families with individuals who are deaf-blind and advocate for their unique needs. The National Family Association for Deaf-Blind believes that individuals who are deaf-blind are valued members of their communities and should have the same opportunities and choices as others in the community. Through family perspectives, engagement, and support we support family advocacy, we foster family to family relationships, we promote partnerships with professionals, we provide information and resources, and offer training opportunities to families. We provide a unified voice that supports and advocates for national polices, as well as bring family and professional voices to researchers and state/national discussions concerning deaf-blindness.
- Who We Are
- What We Believe
- What We Do
Presentation:
3353554_15010PattiMcGowan.pdf
Handouts:
Handout is not Available
Transcripts:
CART transcripts are NOT YET available, but will be posted shortly after the conference
Presenters/Authors
Emma Fricke
(Primary Presenter), Helen Keller National Center, enelson@helenkeller.org;
Emma Nelson, MS Ed is the Initiative Lead for Early Identification and Referral at the National Center on Deaf-Blindness (NCDB). She is certified as an early childhood special educator and has taught infants, toddlers, and preschoolers with complex needs including deaf-blindness in classrooms, community, and home-based settings. Before coming to NCDB, she served as Project Director for Vermont’s Federal Deaf-Blind Project. Emma is trained in Cortical Visual Impairment (CVI) and earned her Master's degree at Hunter College in Early Childhood Special Education with a concentration in severe and multiple disabilities and deaf-blindness.
ASHA DISCLOSURE:
Financial -
• Receives Salary for Employment from National Center on Deaf-Blindness.
Nonfinancial -
No relevant nonfinancial relationship exists.
AAA DISCLOSURE:
Financial -
Financial relationship with Helen Keller National Center/National Center on Deaf-Blindness.
Nature: Grant employee.
Nonfinancial -
No relevant nonfinancial relationship exists.
Patti McGowan
(), National Family Association for Deaf-Blind (NFADB), patti@nfadb.org;
I am President of the National Family Association for Deaf-Blind (NFADB), joining NFADB as a member in the early 2000s when our youngest son was first diagnosed as deaf-blind and became a board member in 2009. I work as one of the two-family engagement consultants with the Pennsylvania Deaf-Blind Project. I have had the following opportunities to work as a consultant with National Center on Deaf-Blindness (NCDB) in the development of content for a national website on advocacy and leadership for families, be a regular contributor to the Paths to Transition site through Perkins School for the Blind and took part in the writing team for NCDB Open Hands, Open Access: Deaf-Blind Intervener Modules. I enjoy supporting families in all aspects of advocacy and leadership.
ASHA DISCLOSURE:
Financial -
Nonfinancial -
AAA DISCLOSURE:
Financial -
Nonfinancial -